Self-assessment and progression

Self-assessment of the course of the disease: the ALS Functional Scale

Bei der ALS-Funktionsskala (Amyotrophic Lateral Sclerosis Functional Rating Scale revised (ALSFRSr)-Skala) is a questionnaire that helps people with ALS to record and evaluate the course of their disease.

How the ALS Functional Scale works

The ALSFRSr questionnaire consists of twelve questions, each with five sub-questions, whose answers are rated on a point scale from 0 to 4. This results in a total score between 48 and 0 points, with the help of which the status of the disease can be recorded and the assessment of the course of the disease (fast, average, slow course) can be made.

Representation of the course of the disease and course value

On the page `Progression' you will find a diagram with the values of the ALS function scale over time. The diagram shows a uniform representation of the course of the disease. This makes the development of the disease visible and understandable for patients.

What is the history value?

The progression value in the ALS app offers the possibility to classify the speed of the disease progression as fast, slow or average. It serves as an orientation aid for affected persons as well as treating doctors and therapists. The progression calculator calculates a progression value from the current ALSFRS total value and the date of onset of the disease. If the progression calculator indicates a progression value between 0.5 and 2.0, one speaks of an average course of the disease. A progression value of less than 0.5 describes a slow course of the disease and all values above 2.0 are faster courses of the disease.