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The life of patients and their dependants is being facilitated by our vast knowledge of diseases and health care.

We identify adequate ways to good treatment and health care.

Our data analysis allows us to identify high standards of health care for your supply with assistive devices and therapies.

Scientists can develop tomorrow’s new treatments and assistive devices.

The treatment data is being used to develop new assistive devices, therapies and medicines.

Total number of participants with ALS
8928
New participants with ALS in the past month
78
Age (years)
Percentage (%)
Number
under 20
 
2
20-29
 
28
30-39
 
117
40-49
 
383
50-59
 
1279
60-69
 
2622
70+
 
4497
Age (years)
Percentage (%)
Number
under 20
 
10
20-29
 
42
30-39
 
204
40-49
 
565
50-59
 
1375
60-69
 
1669
70+
 
1267
0
> 500
Agent (Active ingredient)
Ratings (Number)
Patient satisfaction (NPS)
Disease-modifying
Riluzol
Reason for intake:
ALS
Anzahl Patienten
3517
Geschlecht (%)
männl.
 
weibl.
Edaravone
Reason for intake
ALS
Anzahl Patienten
73
Geschlecht (%)
männl.
 
weibl.
Symptom-alleviating
Citalopram
Reason for intake:
compulsive laughter, compulsive crying, depression
Anzahl Patienten
487
Geschlecht (%)
männl.
 
weibl.
Baclofen
Reason for intake
spasticity
Anzahl Patienten
422
Geschlecht (%)
männl.
 
weibl.
Amitriptylin
Reason for intake
sialorrhoea, depression, pain
Anzahl Patienten
215
Geschlecht (%)
männl.
 
weibl.
Therapies
Ratings (Number)
Patient satisfaction (NPS)
General physiotherapy
Reason for treatment
Deterioration of strength, activation, spasticity, pain
Anzahl Patienten
34
Geschlecht (%)
männl.
 
weibl.
Bobath Therapy
Reason for treatment
Deterioration of strength, activation, spasticity, pain
Anzahl Patienten
584
Geschlecht (%)
männl.
 
weibl.
Occupational therapy
Reason for treatment
Motor function, muscle functionality
Anzahl Patienten
304
Geschlecht (%)
männl.
 
weibl.
Speech therapy
Reason for treatment
Speech disorder, dysarthria, dysphagia
Anzahl Patienten
814
Geschlecht (%)
männl.
 
weibl.
Massage therapy
Reason for treatment
Activation, spasticity, pain, muscle tenseness
Anzahl Patienten
514
Geschlecht (%)
männl.
 
weibl.
Assistive device
Ratings (Number)
Patient satisfaction (NPS)
Dynamic Foot Orthoses toe OFF
Reason for treatment
Weakness of the dorsal flexor of the foot
Anzahl Patienten
304
Geschlecht (%)
männl.
 
weibl.
Cough Assist
Reason for treatment
Inefficacy of cough function
Anzahl Patienten
1051
Geschlecht (%)
männl.
 
weibl.
Powered Wheelchair Permobil F5
Reason for treatment
Impaired mobility
Anzahl Patienten
304
Geschlecht (%)
männl.
 
weibl.
Powered Wheelchair Permobil C500
Reason treatment
Impaired mobility
Anzahl Patienten
23
Geschlecht (%)
männl.
 
weibl.
RotoFlex Sit and Rise Bed
Reason for treatment
Impaired mobility
Anzahl Patienten
22
Geschlecht (%)
männl.
 
weibl.
Nutritional support
Ratings (Number)
Patient satisfaction (NPS)
Sip Feeds
Reason for intake
Undesirable weight-loss
Anzahl Patienten
2607
Geschlecht (%)
männl.
 
weibl.
Enteral Tube Feeds
Reason for intake
Dysphagia, undesirable weight-loss
Anzahl Patienten
994
Geschlecht (%)
männl.
 
weibl.

Robot assisted services for people with Amyotrophical lateral sclerosis

Project Robotics-enhanced services for individual and resource-oriented intensive and palliative care in people with ALS (ROBINA)
Supported by Bundesministerium für Bildung und Forschung (German Federal Ministry of Education and Research)
Subject This project investigates the relief experienced in assistive and therapeutic care using robotics as well as the linking of robotics with nursing and care in people with ALS.
Target group People with ALS and their need for intensive and palliative care
Link http://www.projekt-robina.de
 

Dysphagia and intake of tablets in Amyotrophic lateral sclerosis

Project Needs analysis in ALS
Sponsor Desitin Arzneimittel GmbH
Subject General and special needs of ALS-patients with dysphagia. An interview with patients on dysphagia in people with ALS.
Target group Patients with ALS and dysphagia
Link https://old.ambulanzpartner.de/schluckstoerung-und-tabletteneinnahme-als/
 

Treatment of spasticity in Amyotrophic lateral sclerosis

Project Register study capturing the treatment of spasticity in an inter-cohort comparison of patients with Amyotrophic Lateral Sclerosis.
Sponsor Almirall Hermal GmbH
Subject In this project, pseudonymized and aggregated data on the collection, analysis and assessment of current care pathways, routine data and care standards in the treatment of spasticity in ALS are analyzed. The project is set out to develop or enhance medication for the treatment of spasticity in ALS.
Target group Patients with ALS and spasticity
Link https://old.ambulanzpartner.de/nabiximols-amyotrophe-lateralsklerose/

Provision of assistive devices in Amyotrophic lateral sclerosis

Project Provision of Assistive Devices in ALS
Sponsor Ambulanzpartner Soziotechnologie GmbH
Inhalt This project is designed to analyze the provision of assistive devices to patients in a real-world setting. The objective is to define treatment standards for the provision of assistive devices in ALS.
Target group Patients with ALS
Link https://link.springer.com/article/10.1007%2Fs00115-015-4398-2